Wednesday, June 28, 2017

Fibromyalgia: Things I've Tried and My Brief History

This is just a list of the things I can remember that I have tried for fibromyalgia since it started in 2001, and a brief history.  Please keep in mind, Fibromyalgia is different for everyone.  Some of these things help for some people, or at least that's what I've heard.  If you have a food intolerance or vitamin deficiency, then a certain diet will almost definitely help the pain at least a little bit.  

Diets (none ever helped): Gluten free, meat free, whole grain, dairy free, sugar free, caffeine free, paleo, Atkins, low sodium, Weight Watchers, tomato-free (three full years), all natural organic

Vitamin Supplements (none ever helped): Multivitamins, fish oil, calcium, b-12, vitamin D, iron

Exercises (all made the pain worse): Yoga, Pilates, Water aerobics, tai chi, meditation, ballet

Medications: Tylenol 3 (helped a tiny bit, very briefly), Tramadol (helped a tiny bit, very briefly) Lyrica (did not help the pain), Savella (did not help the pain), Cymbalta (did not help the pain), Fentanyl (absolutely nothing), Butrans (helped the pain a lot, still have pain though, and very expensive), Norco (helps the pain just enough to be significant), various antidepressants (never help the pain)

Other: Salt Baths (helps a tiny bit while I’m actually in it), Massages (Help in a normal people way, not a fibro way? lol), Plexus (did nothing), Juice Plus (did nothing), Weight Gain (from 118 to 145 over the span on a few years, made no difference in pain), Weight Loss (back down to 123, made no difference in pain), Physical Therapy (did not help, occasionally just hurt more), Ice (never helps), Heat (sometimes helps a tiny bit)

History:

Born with turned-in feet, slept in braces as an infant.  I was never an incredibly energetic kid, I appreciated bedtime.  That’s not to say I wasn’t active, just not energetic.  Always had pains, thought they were growing pains.  Started ballet when I was 3.  The pains got really bad in one ankle when I was 11, then moved to the opposite shoulder as well. Saw a few doctors, went to physical therapy which did not help.  Had to quit dance when I was 12 because the pain had gotten so bad.  First diagnosed with fibromyalgia at Scottish Rite when I was 13, but it was “unofficial” because I was “too young” to diagnose for sure.  Saw a million doctors.  Married at 18 and moved to North Carolina.  Started getting migraines, prescribed daily Propranolol for the migraines which prevents me from getting them almost entirely.  Also diagnosed with Endometriosis after diagnostic laparoscopy in October 2009, consistent birth control (Yaz, skip placebos, immediately start next pack) helps a lot.  Re-diagnosed with fibromyalgia in North Carolina in 2011.  Moved back to Texas in 2013. Continued working out as regularly as I possibly could, which was less and less over time, until finally in 2015 the pain got so bad I could not exercise at all anymore, beyond everyday things (cleaning, grocery shopping, etc.).  My primary doctor was treating me with Norco, wasn’t helping enough, switched to Butrans.  Literally life changingly helpful, went from a 7-8 on the pain scale most days to 4-6.  Haven't been below a 4 in at least 7 years.